get RAD for RETT

 

RAD for RETTOn March 9, 2013 my brother, Alexander Dones, our friend Joori Jung from Detroit, and I hosted the first ever get RAD for RETT, a day of dance to raise funds and awareness for the International RETT Syndrome Foundation.

The idea for get RAD for RETT was to have a day of donation-based dance classes where 100% of the funds generated go to IRSF, whose core mission is to fund research for treatments and a cure for Rett syndrome while enhancing the overall quality of life for those living with Rett syndrome by providing information, programs, and services.  These classes focused on the joy of sharing the self through movement and various forms of self-expression.

We raised a little over $500.00 in our efforts and couldn’t be more happy! All we can say is a huge…

THANK YOU! THANK YOU! THANK YOU!

Our hearts are overwhelmed with the huge response and involvement across the country! We had an incredible day of dancing, fun, and smiles! To watch the video of the workshop or to search for other videos on my Vimeo channel, click on the picture below.

get RAD for RETT Portland

 

If you are not familiar with Rettsyndrome, here are a few things to know about this developmental disease:

•Rett Syndrome is a unique developmental disorder that is first recognized in infancy and seen almost always in girls, but can be rarely seen in boys.

•Rett syndrome has been most often misdiagnosed as autism, cerebral palsy, or non-specific developmental delay, and is caused by mutations on the X chromosome on a gene called MECP2.

•Rett syndrome strikes all racial and ethnic groups, and occurs worldwide in 1 of every 10,000 to 23,000 female births.

•Rett syndrome causes problems in brain function that are responsible for cognitive, sensory, emotional, motor and autonomic function. These can include learning, speech, sensory sensations, mood, movement, breathing, cardiac function, and even chewing, swallowing, and digestion.

You can also find out more about the foundation as well as Rett Syndrome at www.rettsyndrome.org.

 

Thank you, from the bottom of our hearts and beyond.